Individual feedback from Day 1
• It has given me hope
• I did not realise the amount of groups and services out there
• I wish our involvement could have started earlier in the process
• I feel quite excited
• I have a clearer understanding of what it is all about and hope that Service Users and Carers can be treated as people
• I am reassured at the amount of services we have, and I am going to get involved
• I like the idea of service users and carers being in at the start and the whole process and to take things where they should be
• We are going to make change and be heard
• This will give us power to the elbow
• This will allow us to help pull things together, I recognise the positives and recognise how the NHS has drifted
Day 2 feedback on Mental health recovery star and Verona service satisfaction scale
Mental health recovery star:
• Some degree of complexity
• Traffic lighting would help better
• Visual imaging is good and clear
• Opportunity for real holistic working
• Partnership working opportunities
• There is a need for blind/ visually impaired version
• Lacking in carers side and relationships
• It needs to be done with someone who knows you and your background
• It needs input from other family members
• It needs to highlight when a carer is struggling
Verona service satisfaction scale:
• It should be a consistent reporting scale, the one used is confusing
• It is very wordy
• It is too long
• It is not User or Carer friendly
• I like the depth
• It would be good as an electronic tool, which is anonymous
• Free text should be at the start and not at the end
• It would be exhausting to complete
• There is some degree of duplication of questions
• We need to develop a regional satisfaction scale and would like to protect a days workshop to do it
• It involves carers
• There should be explanations with the questions
• Language is an issue
• There should be feedback after completion
Individual feedback from Day 3
• Good networking
• Nice to meet like-minded people
• It has given me more interest in services
• Good to share my experiences with others
• A steep learning curve
• It will be good to keep in touch
• We have stuff we can take forward
• It will enable me to become more active in the local Implementation
• I have better knowledge of mental health services
• It will be great to see good theory in practice
• It has been a damn good investment; I have a lot more knowledge
• I have learnt loads and have had great support from everyone
• I am delighted that there are delegates hare to represent the commissioners and build links
• A good beginning, we need to keep working together
Next steps and comments from Users and Carers final group session
• Reviews need to be conducted by independent user and carer groups- to put into specifications
• There need to be statements in the specifications around how individuals can re-engage with services
• There needs to be a statement in the specifications that service users and carers have authority to be involved in service reviews
• Creative methods need to be used around the review process, not just questionnaires
• There needs to be feedback to Users and Carers after the review process
• There needs to be information sharing and planning of the involvement of users and carers well in advance of reviews
• If commissioners are serious about user and carer involvement they need to improve engagement with users and carers
• There needs to be better education available for users and carers (better information, respite, ability to meet other carers)
• There needs to be resourcing for user and carer groups to do the things commissioners require
• Users and carers should be able to make recommendations for improvement as part of the review process- explicit in specifications
• Staff should have mandatory training in understanding user and carer issues
• There should be development and support for user and carer charters
• There should be a sharing of the peer review questions
• There should be a central good practice resource
• There should be benchmark documents available for user and carer groups
• There should be better guidance on payments/ reward/ recognition
• We would like a follow up day